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Please use this identifier to cite or link to this item: http://hdl.handle.net/123456789/13529

Title: DISCLOSURE SPECIAL ISSUE: HIV Knowledge, Stigma and Illness Beliefs among Pediatric Caregivers’ in Ghana who have not Disclosed their Child's HIV Status
Authors: Paintsil, Elijah
Renner, Lorna
Antwi, Sampson
Dame, Joycelyn
Enimil, Anthony
Ofori-Atta, Angela
Alhassan, Amina
Pokuaa Ofori, Irene
Cong, Xiangyu
Kyriakides, Tassos
Reynolds, Nancy R.
Keywords: Pediatric HIV
disclosure
knowledge
stigma
illness perception
bioecological systems theory
Issue Date: 2015
Publisher: HHS Public Access
Abstract: The majority of HIV-infected children in sub-Saharan Africa have not been informed of their HIV status. Caregivers are reluctant to disclose HIV status to their children because of concern about the child's ability to understand, parental sense of guilt, and fear of social rejection and isolation. We hypothesized that the low prevalence of pediatric HIV disclosure in Ghana is due to lack of accurate HIV information and high HIV stigma among caregivers. This is a preliminary analysis of baseline data of an HIV pediatric disclosure intervention study in Ghana (“Sankofa”). “Sankofa” – is a two-arm randomized controlled clinical trial comparing disclosure intervention plus usual care (intervention arm) vs usual care (control arm) at Korle-Bu Teaching Hospital (KBTH; control arm) and Komfo-Anokye Teaching Hospital (KATH; intervention arm). We enrolled HIV-infected children, ages 7 to 18 years who do not know their HIV status, and their caregivers. Baseline data of caregivers included demographic characteristics; Brief HIV Knowledge Questionnaire (HIV-KQ-18); Brief Illness Perception Questionnaire (Brief IPQ); and HIV Stigma Scale. Simple and multivariable linear regression analyses were used to assess the relationship between caregiver characteristics and HIV knowledge, stigma, and illness *Correspondence to: Elijah Paintsil, MD., Departments of Pediatrics, Pharmacology & Public Health, Yale School of Medicine, 464 Congress Avenue, New Haven, Connecticut 06520, USA. Phone: 203-785-6101 Fax: 203-785-6961; elijah.paintsil@yale.edu. ClinicalTrials.gov Identifier: NCT01701635Members of the Sankofa Project Team: Elijah Paintsil, Nancy Reynolds, Tassos Kyriakides, Xiangyu Cong, and Yram Foli, Yale University, USA; Lorna Renner, Margaret Lartey, Angela Ofori-Atta, Jonas Kusah Tetteh, Joyceline Assimeng, Obedia Akweley Seaneke, Dramani Yakubu, and Kevin Bonsu, Korle-Bu Teaching Hospital, Accra, Ghana; Sampson Antwi, Kofi Aikins Amissah, Anthony Enimil, Amina Alhassan, and Irene Pokuaa Ofori, Komfo Anokye Teaching Hospital, Kumasi, Ghana; Ann Christine Catlin, Sumudinie Fernando, Ruwan Egoda Gamage, Ruchith Fernando, and Sudheera Fernando, Purdue University, USA. HHS Public Access Author manuscript AIDS Care. Author manuscript; available in PMC 2015 December 01. Published in final edited form as: AIDS Care. 2015 December ; 27(0 1): 18–27. doi:10.1080/09540121.2015.1007116. Author Manuscript Author Manuscript Author Manuscript Author Manuscript perception. Two hundred and ninety-eight caregivers were enrolled between January 2013 and July 2014 at the two study sites; KBTH (n=167) and KATH (n=131). The median age of caregivers was 41 years; 80.5% of them were female and about 60% of caregivers were HIV-positive. Seventy-eight percent of caregivers were self-employed with low household income. In both unadjusted and adjusted analyses, HIV negative status and lower level of education were associated with poor scores on HIV Knowledge questionnaire. HIV positive status remained significant for higher level of stigma in the adjusted analyses. None of the caregiver's characteristics predicted caregiver's illness perception. Intensification of HIV education in schools and targeted community campaigns are needed.
Description: This article is published in HHS Public Access and also available at doi:10.1080/09540121.2015.1007116.
URI: http://hdl.handle.net/123456789/13529
ISSN: 10.1080/09540121.2015.1007116.
Appears in Collections:College of Agric and Natural Resources

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