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Please use this identifier to cite or link to this item: http://hdl.handle.net/123456789/13525

Title: Illness Narratives of Children Living with HIV Who Do Not Know Their HIV Status in Ghana: I’m Sick, But I Don’t Know the Sickness—A Qualitative Study
Authors: Farthing, Heather
Reynolds, Nancy R.
Antwi, Sampson
Alhassan, Amina
Ofori, Irene Pokuaa
Renner, Lorna
Amissah, Kofi Aikins..et..al
Keywords: Disclosure
Children living with HIV/AIDS (CLHIV
Illness narratives
Illness narratives
Sub-Saharan Africa
Issue Date: 2020
Publisher: AIDS and Behavior
Abstract: Despite available guidelines for disclosure of HIV status to children, most children living with HIV are unaware of their diagnosis. We sought to characterize the concepts of illness and treatment among children living with HIV who do not know their status. As part of the Sankofa trial we interviewed 435 children aged 6–18 enrolled in clinical care at pediatric HIV clinics at two teaching hospitals in Ghana. Theoretic thematic analysis generated themes among responses. The children believe they come to the clinic to collect medication, to address specific symptoms, to prevent and treat ‘sickness’, or as part of their routine. Most children learned of their ‘illness’ from a family member. A majority (73.5%) of children had never talked about their ‘illness’ with anyone else; many feared consequences. Children living with HIV who do not know their status exhibit signs of anticipated and internalized stigma regarding their unknown ‘illness.’ An understanding of the way children conceptualize their illness has implications for health promotion and the provision of appropriate information to children living with HIV.
Description: This article is published in Taylor & Francis and also available at https://doi.org/10.1007/s10461-020-02884-4
URI: 10.1007/s10461-020-02884-4
Appears in Collections:College of Agric and Natural Resources

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