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|Title: ||The paediatric participation scale measuring participation restrictions among former Buruli Ulcer patients under the age of 15 in Ghana and Benin: Development and first validation results|
|Authors: ||Phillips, Richard O.|
Beeres, Dorien T.
Abass, Kabiru M.
Johnson, Roch C.
|Issue Date: ||14-Mar-2019|
|Publisher: ||PLOS Neglected Tropical Diseases|
|Citation: ||PLoS Negl Trop Dis 13(3): e0007273. https://doi. org/10.1371/journal.pntd.0007273|
Buruli Ulcer (BU) is a neglected tropical disease caused by Mycobacterium ulcerans. Former
BU patients may experience participation restrictions due to physical limitations, stigmatization
and other social factors. A scale that measures participation restrictions among
children, who represent almost half of the affected population, has not been developed yet.
Here, we present the development of a scale that measures participation restrictions in former
BU paediatric patients, the psychometric properties of this scale and the scales’ results.
Items were selected and a scale was developed based on interviews with health care workers
and former BU patients in and around the BU treatment centre in Lalo, Benin. Construct
validity was tested using six a priori formulated hypotheses. Former BU patients under 15
years of age who received treatment in one of the BU treatment centres in Ghana and Benin
between 2007–2012 were interviewed.
A feasible 16-item scale that measures the concept of participation among children under
15 years of age was developed. In total, 109 (Ghana) and 90 (Benin) former BU patients
were interviewed between 2012–2017. Five construct validity hypotheses were confirmed of which 2 hypotheses related to associations with existing questionnaires were statistically
In Ghana 77% of the former patients had a Paediatric Participation (PP) scale score of 0
compared to 22% in Benin. More severe lesions related to BU were seen in Benin. Most of
the reported participation problems were related to sports, mainly in playing games with others,
going to the playfield and doing sports at school.
The preliminary results of the PP-scale validation are promising but further validation is
needed. The developed PP-scale may be valid for use in patients with more severe BU
lesions. This is the first research to confirm that former BU patients under 15-year face participation
restrictions in important aspects of their lives.|
|Description: ||An article published by PLOS Neglected Tropical Diseases an available at https://doi.org/10.1371/journal.pntd.0007273|
|Appears in Collections:||College of Health Sciences|
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